The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life.
Link: Sickle Cell Society
The UKTS is the only national charity in the UK that supports and represents people affected by a thalassaemia.
A National Haemoglobinopathy Panel (NHP) was also created, to provide expert, multidisciplinary advice on difficult decisions about the management of patients with sickle cell disease, thalassaemia and some other rare anaemias. KCH, GSTT and the Evelina were also appointed to jointly host this panel, which will work closely with the SELSE HCC and other HCCs across England.
Visit the NHP website.
Help the Prescription Charges Coalition’s campaign for free prescriptions for those with long term illnesses. Send an email to your MP in less than two minutes! Prefer to send a letter? No problem. Download a template to send to your Mp. Not sure who your MP is? Visit the Houses of Parliament website to search using your postcode.
