Welcome to the Patient Hub

A dedicated set of resources for your information, to provide support and guidance tailored to individuals living with red cell disorders including Sickle Cell Disease, Thalassaemia and Rare Inherited Anaemias.

The Patient Hub contains a range of helpful resources to support your journey, from practical tools in our Patient Resources section and essential advice in the Patient Videos & Leaflets. For more support, our Useful Links provide easy access to additional trusted resources.

We need interested individuals who use our services, including parents, carers and patients, to share their views on service development and attend virtual meetings via Microsoft Teams. There’ll be up to six network meetings per year to contribute to network discussions. Please email the team at kch-tr.selsehccadmin@nhs.net if you’re interested in being involved, and also if you have any articles or comments for upcoming Newsletters.

Health & Wellbeing Resources

Information on managing pain, complications of haemoglobinopathies, vaccination and travel advice
Patient Videos
Patient Resources
Community Services
Clinical Trials

Patient & Family Support

Information about local support groups for patients with Haemoglobinopathies as well as resources on
Patient Support Groups
Around the Web
Mental Health Resources
You Asked, We Did
Citizens Advice & Benefits Guidance
Charities
Peer Mentoring Scheme
Help with Health Costs
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